Federal Funding "Pause": Five-Alarm-Fire, Doused for Now
02.04.2025 | Linda J. Rosenthal, JD
One day, you’ll read about some chapters of National Organization X breaking away. The next day, there will a press release about a happy merger of separate organizations Y and Z devoted to the same charitable cause.
These decisions to marry or divorce – philanthropically speaking, that is – often focus on the practical considerations of policy and strategic planning.
Of course, being lawyers, our worldview is a bit different. We walk down the street and see a car accident. Like other bystanders, our first thoughts are about the health and welfare of the victims, but invariably – and quickly – our minds float off into the land of “comparative negligence” and “uninsured motorist liability.”
So when we hear about charity groups making major changes, we start focusing on issues like “who owns the assets” and “which state’s law applies to govern the dissolution of a national organization.” If it’s a dissident group of members breaking off, we wonder “who gets to keep the corporate name and goodwill.”
You get the idea. We specialize in “issue identification”: trying to predict likely problems – whether or not they will materialize in the future.
Based in New York City, OCRF is the larger organization, with 14 employees and revenue of more than $9.3 million in 2013 …. Much of its program expense is funding research – $7.4 million in 2013. It’s the largest charity funding ovarian cancer research in the United States. OCNA has seven employees and revenue of $1.6 million, with program spending focused on education, awareness and advocacy. The Washington, D.C.-based OCNA is a patient support organization with more than 60 partner member organizations.
It’s like a 30’s-something commuter-marriage couple; they have great jobs in separate cities. One partner can keep her shabby chic decor as well as all of her favorite kitchen appliances. The other partner can have his “man cave” with the ugly chair, center-stage, next to the beer keg. Couples moving in together have to decide whose coffee maker and toaster oven stay on the counter of the tiny galley kitchen; these ugly fights play out every day on HGTV. Here, each ovarian cancer group can keep its own stuff (read: leadership, staff, office leases, community contacts and reputation, expertise and focus, etc.)
As separate groups supporting the same cause, we recognized that the organizations gaining the most ground against specific diseases were those that developed a ‘one-stop shop’ approach through research, advocacy, education and awareness. Highly effective organizations such as the Michael J. Fox Foundation for Parkinson’s Research, Juvenile Diabetes Research Foundation, and American Lung.